OK some update about this, of course Idid not hear anything from GSK so I decided to give them a call and they had not recieved my message.
So I asked were I could send it again so it would be read. They told me, do not laugh..., to contact my farmacist because they were not allowed to give any information about prescription medicines and I should look for information in the leaflet..... LOL!!!
So I told her I had already talked to both my doctor and farmacist but they were unaware of the problems and not able to help me. Also I told that I inbetween had gathered information from international known medical specialists that the leaflet of Seroxat was not accurate and did not give any useful information about discontinuation and therefore my doctor and farmacist were not able to advise me. Also I mentioned a TV program I have been in touch with.
And then suddenly she gave me an email address and I resent my letter, Within hours, there was a reaction were they asked for my home address (to send a customer complaint form). I refused to give them this but still insist to get answers.
I will post the Google-translated versions of the correspondence here:
Dear Mr. XXXXXXXX,
We acknowledge receipt of your mail.
You report an adverse and undesirable effect of a drug.
To continue to treat a form we would like to send this message so we can administer.
We would like your address received.
Turning to further process your request, we send this email to the relevant department.
Thank you for your cooperation.
Sincerely,
NL Info
Medical Customer Support Center
GlaxoSmithKline | House to Heideweg 62 | 3705 LZ | Zeist | The Netherlands
And my reaction on this mail:
L.S.
Given the behavior of GlaxoSmithKline on Seroxat / Paxil in the past as evidenced by several scientific articles, reports of lawsuits, TV reports and user reports and statements of GSK-Seroxat-responsible officer and mr. Alastair Benbow, I find it under my own safety is not desirable that the above-makers on my private home address on file.
I will therefore not pass, but I am willing to further questions, either through a form, to answer.
My goal is a clear response from GSK on my experience and questions and an explanation how it is possible that this could have occurred and why the leaflet still barely (and for some years none at all) gives useful information on safe discontinuation of the agent, and from thorough research by Professor David Healy (Professor of Psychiatry) and others, and the overwhelming amount of information from the major online support groups, shows that the drug should be tapered off very slowly, with dose reductions of up to 5-10 % per 3-6 weeks, the means can never be reduced by alternating to swallow although still recommended by doctors (often with disastrous consequences) and under the 1 (one) milligrams can not safely be stopped without the risk of life-threatening adverse reaction as seen by me also occurred after withdrawal from 10 mg (ie according to the Directive in the leaflet) and me for several years virtually disabled has made as a result of the intolerable and never experienced physical / psychological / neurological phenomena by very many ex-users as "hell on earth" are defined and for at least a significant minority certainly not "after 3 weeks are" as the leaflet still mentions.
You may use this reaction together with my earlier email to the appropriate department to send. I firmly tell when I'm already in contact with various interest groups as well as with many other victims, or survivors thereof, of Seroxat / Paxil worldwide and I see your reaction (or lack thereof) on my / our experience and thus will therefore ask parts.
Sincerely,
XXXXXXXXXX
