The Recovery Will Happen - Luc's journal

[Sheila]

This whole Internet thing and the special communities discussion forums thing is the most amazing evolutionary step in our civilization. It blows my mind to see people sharing information and support about different very specialized needs. I keep stumbling across different communities' discussion forums. It's just fascinating.

<--- no more silencing; people are speaking!

[Luc]

For a couple of days now I've been doing very mild physical exercises - though I still experience the worsening of symptoms, it looks like this time around those are slighty less intense than in my previous attempts. Yes, it's rough, but I am hanging in here. Undertaking, at least some, physical activity is a must in my situation - I hope for some neuroplasticity to happen. I'll keep you posted about the progress, folks.

[stan]

i am trying this every day in walking, mild, always stop before pain too strong,
this is good, Luc

[Luc]

Keeping doing mild exercises, and not giving up on them (for the first time in a long long time). In my previous attempts, the worsening of symptoms was so hellish I begged to go back in time and somehow "undo" the exercises. As I already said earlier, despite the worsening of the symptoms, this time around, I think, (and I hope to not jinx it) I will be able to continue these very mild exertion. The plan now is to keep its volume and intensity on the same level, and then, when I feel comfortable with that, I will move it up a notch.

[Luc]

Today I did some exercises, then left the house and had a short walk. It's still rough, but if I did the same stuff not that far back (a month or two ago), the symptoms would go through the roof. Not pushing things though and staying patient.

[Sheila]

[Luc]

Update - I upped the exercises again - very incrementally. Two days ago, as I had forgotten that I am not allowed to eat this one food - it worsens the symptoms (it was just some sauce), lol, it got worse (chest pressure, problems with breathing, more anxiety and agoraphobia, etc). But hanging in here. Tomorrow I'm planning two short walks. My hair has grown almost completely back (after losing it like crazy for a long time). In general, despite what it still is, and how "it still is" is rough, it's better than a year ago. The next year will see still more improvement.

[stan]

i feel a little improvement in walking, chest pain, but it is not enough to be able to walk everywere i desire

[Luc]

i feel a little improvement in walking, chest pain, but it is not enough to be able to walk everywere i desire

Just keep doing it, Stan. At the same time remember to not push it too far. I think the system you have - 50 steps (for instance), rest, 30 steps, rest, 10 steps, etc., is a very good one. I'm 100% certain your walks have already brought lots of neuroplasticity.

[Luc]

More and more am I realizing that no matter how rough it still sometimes gets for me, I know two things to be undeniably true; first, it's been improving, slowly, very slowly, but it's been improving - my early WD was something so abysmally hellish, I'd never be able to descibe it, and second, despite this slow, very slow healing, as time passes, I'm getting more and more certain that at some point the Rubik's Cube our bodies and minds are solving will eventually be completed. We will get there, guys.