Quote Originally Posted by Mike View Post
[B]
In 2010 when the SS-like symptoms had been gone for 2 years and everything else was very slowly improving it was easy to do what you describe above. I was guardedly optimistic even excited at times about the prospect of recovery. But now that the SS-like symptoms have been back for more than two years and I am in such discomfort it's really hard to see it this way. 80% of the time it's just feels like endless suffering. I can still see modest improvement in my non-episodic symptoms but it's just so hard to see the glass as half full when there is so much minute by minute suffering (confusion, severe muscle discomfort, agitation, etc).

My "something" is cycling.... I have intense interest in it and love it when I can do it but lately exercise has been causing confusion, etc. This is a problem that I've had for 15 years so it seems I may be left with a passion that I can't pursue... Thank you for all of the good work you do here. You are very thoughtful and knowledgeable about withdrawal and living with chronic illness. Keep up the good work.

I do this for hours and hours a day reading cycling journals. It's very enjoyable but I have to wonder what the point is if I am never going to able to do what I want within cycling. It's not looking so good after 12+ years of illness, 15 years of exercise reactions, etc. I guess it's time to turn to other things, reading, writing, meditation...

Thanks again,

-Mike
i understand all this, but the physical technical logical pattern of recovery is strange, maybe it is as always a last long wave which will vanish