Welcome, shel!

I understand that you feel like you’re between a rock and a hard place. I don’t know your story, so just correct me if I’m wrong, but I’m wondering if maybe you are trying to get to normalcy or comfort, and are going to have to let go of that in order to get off these toxins. I’m wondering if maybe you’re going to have to embrace some degree of discomfort in order to taper.

I can’t really remember what each taper did re the headaches. What I definitely remember was that each taper made my muscle tension worse. That was the limiting factor for me – I went as fast as the muscle tension would allow. And if I had it to do over, I would go slower. Now, as part of that extreme muscle tension from the back of my head to my legs, I know I got headaches, sometimes very bad ones. Plus, sinus congestion was a big factor. I occasionally threw up from headaches early on. That got slowly better.

Thank you for your kind words about my positivity. I do work hard at that, but it has been a process. And I am also a firm believer in really expressing your pain, fear, rage, and despair to yourself and to someone else who can support you -- regularly! It’s a balancing act. I belief both are required. You have to say your worst feelings, and then you have to contain them and cultivate your ability to have faith and hope.

So, for you, it might be that what would work best is an ultra-slow taper, kind of like grandmaD is doing. But with each drop, you would need support to tolerate a temporary, moderate worsening of your symptoms, and perhaps you would only get partial stabilization before you moved to the next drop. That might be the best, though not ideal, scenario.

What do you think? Also, where are your headaches, and what do you think is causing them, and what, if anything, helps them?