Michele -- To me, the fact that you’re not stabilizing just means that your body is saying no to these meds, and you just have to slowly taper off. I’m sure you will be able to taper off. You just have to go slowly in small increments, and get some support during the process.
Maybe you can think of it this way – you’re going to have to go through some pain, but it will be doable, and you’ll have a lot of company, and the reward will be freedom from the tyranny these meds have over your life, and you will have a whole new life, better than anything you’ve experienced yet. And…you’re one of the guides for the pandemic that is coming. You’re going to be using this w/d experience in some vital way for the good of the whole.
Now, another idea I have – and this is speculative – is that you might try slowly going up on Omega-3 before you start tapering or while you start an ultra-slow taper. I hypothesize – but don’t know – that Omega-3 may be neuroprotective during the taper. There’s tons of evidence of it being neuroprotective in other neurological conditions.
Do you feel your headaches are caused by muscle tension, sinus congestion, or something else?