Hi Sheila,

Thank you for your message Sheila. That is kind of you to think of me. Sorry I have been laying low for the last week but I haven't disappeared.

How are you doing? I hope you are feeling well and enjoying the summer. Is it very hot there? Here is has been around 30C.
I have been finding it too hot in the day to be outside much but when we are driving the air feels lovely with the wind is blowing through and I feel contented at that time. The land is pretty now. There are fields of barley and hay and yellow fields of canola. Everything has come alive.

I haven't been feeling good. I don't think it is because of w/d. I am crashing faster now. (aka, hitting the wall)...not as bad as I can feel it coming but I think it is more often. Last Friday we went out, about a 40 min drive and then we got groceries in a small place. I had a telephone call that was long and a little trying but felt good that day. Sat, Sun and Monday I was in bed and felt awful. Just crashed. I cried because I felt so weak and tired and depleated. It felt terribly wrong.
Tuesday morning my partner made an appointment for me at a different doctor and we went there. Of course that day after laying around for 3 days, I was feeling and looking much better. I told the doctor about my adrenalectomy and suggested some testing. The doctor was very nice and let me pick what I wanted tested. We went over the sheet together. (I am sure he love that!!, lol)..I am leaning toward thinking that there is still something wrong with my levels. Also I am having the pressure on my abdomen still...although no pain. I was feeling anxious and maybe I just seemed whacked, (didn't think so), but the doctor responds to my comment that I was having trouble sleeping...with..do you think you have anxiety? Maybe you are depressed? I said NO, I am not depressed (this may not be 100% true but I didn't like where it was going). He says maybe an antidepressant would help me. I said I wasn't feeling depressed or anxiety. He said maybe I could try a little bit like 10mg of something. ERRRRR, I found it insulting and just said NO, I would not be taking anything, ever. He stopped then.
The doctor called me tonight to say my potassium is low and to take some supplements, slow K (600mg) 2x day until I see him on Wed. I don't believe it is very low..just a little, he said it was 3.2. Interesting enough, the last useless doctor I had before this did blood tests and the level was the exact same. He said it was fine and wasn't concerned. ..not sure what to think..it shouldn't be low at all. I requested my aldosterone to be checked too and I expect that it will come in high.
I don't think the removeal of the adrenal glad with the tumor solved the problem. I remember when the specialist had looked at me he had also commented that my renin was low. As far as I remember the renin is produced in the kidneys and the increase in renin signals the adrenals to produce more aldosterone. So low renin...should mean low aldolesterone. My understanding of it. The tumor I had was a functioning tumor that produced aldosterone. The removal of it should have solved the problem. However, I left that specialist because he insisted on doing a test I didn't want. It involved a stint in the leg where they would pump in salt and simply watch what happened in my kidneys. He wasn't sure that the tumor was the entire problem..but I bypassed him while he was on holidays and got a surgeon to remove it for me. I never went back and had no followup. So...maybe the doctor's hesitancy was with good reason. ...anyway, will see on Wed what the blood tests say. I think I forgot to ask the doctor to check the Renin level. Hope this isn't too long and boring Sheila, sorry.

Yesterday we were out again and it was a good 11 hours and busy. i did fantastic. I didn't crash..and today..crash!! Not completely, but very lethargic and don't feel very well. So that is where I am at.

I really appreciate your caring,
thank you Sheila,
love joy